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Cystinosis Research Foundation
LIFETIME AMOUNT RAISED
About Cystinosis Research Foundation
The Cystinosis Research Foundation is a non-profit 501 (c) 3 charity established to find a cure for cystinosis. Cystinosis is a rare metabolic disease that affects every organ in the body including the eyes, kidneys, liver, muscle and brain. Cystinosis affects approximately five hundred in the United States and less than 2,000 worldwide. Currently there is no cure for cystinosis. The Cystinosis Research Foundation 's mission is to raise funds to support clinical and bench cystinosis research, to find better treatments and to find a cure for cystinosis. We have established the CRF Research Fellowship Program to support and encouage young scientists and doctors to establish careers in cystinosis research. We are the largest grant provider of cystinosis research in the world. Funding quality cystinosis research studies remains a priority and is an ongoing process. The CRF announces global calls for research proposals bi-annually in the spring and fall of each year. After review and recommendations by our Scientific Review Board, research grants are issued. In 2006, the CRF established the first Cystinosis Research Fellowship Program designed to support scientists and new researchers who have an interest in cystinosis research. To date, the CRF has funded and committed more than $33 million to cystinosis research and has awarded 143 research studies and fellowships in 12 countries. Today, with the support of our partners, friends and community we have significantly changed the course of cystinosis research. Our funding efforts have allowed talented doctors and researchers in the area of cystinosis to initiate novel research studies and to advance their research efforts.
18802 Bardeen Ave., Irvine, CA 92612
TOGETHER, WE'VE RAISED
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