The XP Family Support Group was founded in 2005 to improve the quality of life to those diagnosed with Xeroderma Pigmentosum. We provide families and individuals with resources that improve their quality of life.
The XP Family Support Group is a 501 (c) 3 public benefit non-profit organization which works to raise awareness about XP and other UV light sensitive conditions. It is our mission to support families as they live with XP. We are aggressively exploring research opportunities and funding. We also provide sunscreen, light meters, and other UV protection to those who request assistance.