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XLH Network
LIFETIME AMOUNT RAISED
$60.51
About XLH Network
XLH (short for X-Linked Hypophosphatemia) is a rare genetic disorder affecting 1 in 20,000 people worldwide causing rickets in children and osteomalacia in adults. It is still known by some as Vitamin D Resistant Rickets and is sometimes referred to as Familial Hypophosphatemia. This disorder can be passed down through families on a defective dominant X-Linked gene called PHEX, but new families can be affected as well due to spontaneous genetic mutations upon conception. The XLH Network began in 1996, incorporated as a not-for-profit corporation in 2005, and is now a 501(c)(3) charity. The organization provides both a public and a members-only website and a listserv discussion group for affected members. Very few physicians are familiar with XLH and without a physician experienced in its treatment it often goes undiagnosed, misdiagnosed, and/or inappropriately treated. The XLH Network aims to raise awareness about this little understood condition.
Address
911 Central Avenue, #161, Albany, NY 12206
Website
TOGETHER, WE'VE RAISED
$60.51
2016 Earnings
MonthGoodsearchGoodshopOtherTotal
2016 Total$0.00$0.00$0.00$0.00
January$0.00$0.00$0.00$0.00
February$0.00$0.00$0.00$0.00
March$0.00$0.00$0.00$0.00
April$0.00$0.00$0.00$0.00
May$0.00$0.00$0.00$0.00
June$0.00$0.00$0.00$0.00
July$0.00$0.00$0.00$0.00
August$0.00$0.00$0.00$0.00
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Top Supporters

Mandy
LIFETIME AMOUNT RAISED
$60.51
Get Fetch and support this cause whenever you shop online
Fetch-dog
You have the power to make a big difference!
Sign up for Goodshop and we'll donate to XLH Network when you shop online!
Created January 27, 2008
Joan Reed
ALL SUPPORTERS
92
Mandy

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