Address
437 Snydertown Road
Craryville, NY 12521
Website
www.xps.org/
Description
charity to provide xp family support in terms of education, protection, advocacy and research toward a cure for patients with xeroderma pigmentosum and related sun-sensitivity disorders. Also runs Camp SUndown, a unique to the world program for XP families and scientists to gather to share information, recreation and friendship under the safety of the stars.