Sotos Syndrome Support Association - SSSA

Amount Raised:
$479.55

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Supporters:
523

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Information

Address

P.O. Box 4626
Wheaton, IL 60189

Website

www.sotossyndrome.org/

Description

Organized in 1988, the Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States. The SSSA is a non-profit organization which is incorporated in the state of Missouri. The SSSA is an Associate Member of the National Organization of Rare Disorders (NORD) and is a member of the Alliance of Genetic Support Groups. A social support environment for professionals and families of individuals affected by Sotos syndrome so they can meet, exchange ideas and help one another cope with the condition.

Category

Disabled