P.O. Box 4626
Wheaton, IL 60189
Organized in 1988, the Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States. The SSSA is a non-profit organization which is incorporated in the state of Missouri. The SSSA is an Associate Member of the National Organization of Rare Disorders (NORD) and is a member of the Alliance of Genetic Support Groups. A social support environment for professionals and families of individuals affected by Sotos syndrome so they can meet, exchange ideas and help one another cope with the condition.