The RRPF is a 501 (c) (3) non-profit corporation as determined by the Internal Revenue Service.
Fed. Id #: 521798693
is their site.
The Recurrent Respiratory Papillomatosis Foundation was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.
(this is a rare disease that affects children and adults involving multiple surgeries - there is no cure at this point in time).