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Gaithersburg, MD 20878
Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” The mission of the Osteogenesis Imperfecta Foundation is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support. Each year, the Foundation serves thousands of people and provides almost $1 million in funding to deserving programs and scientists. In addition to research, the OI Foundation National Information Center meets the need for information about OI through free and low-cost resources on its web site, as well as individual responses to thousands of inquiries each year. This information helps constituents understand the medical and genetic facts about OI, diagnosis and testing, treatment options, basic and clinical research, and techniques for caring for infants and young children.
Children & Youth, Disabled, Health & Disease