Opitz Trigonocephaly Syndrome Family Network - OTSFN

about

Opitz Trigonocephaly or Opitz-C Syndrome is a rare genetic disorder that was first described in 1969 by Dr. John Opitz. The most characteristic feature of Opitz-C is trigonocephaly. Affected children also often have, among other symptoms, cardiac problems, unusual frenulae, low set posteriorly rotated ears, hypotonia, finger and toe anomolies and developmental delay or mental retardation. Our goal is to offer support and encouragement among families by sharing successes, thoughts and ideas.

address

1720 Hudson Street
Denver, CO 80220

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