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Opitz Trigonocephaly Syndrome Family Network - OTSFN
LIFETIME AMOUNT RAISED
$40.75
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Sign up for Goodshop and we'll donate to Opitz Trigonocephaly Syndrome Family Network - OTSFN when you shop online!
ALL SUPPORTERS
6
About Opitz Trigonocephaly Syndrome Family Network - OTSFN
Opitz Trigonocephaly or Opitz-C Syndrome is a rare genetic disorder that was first described in 1969 by Dr. John Opitz. The most characteristic feature of Opitz-C is trigonocephaly. Affected children also often have, among other symptoms, cardiac problems, unusual frenulae, low set posteriorly rotated ears, hypotonia, finger and toe anomolies and developmental delay or mental retardation. Our goal is to offer support and encouragement among families by sharing successes, thoughts and ideas.
Address
1720 Hudson Street, Denver, CO 80220
Website
ALL SUPPORTERS
6
TOGETHER, WE'VE RAISED
$40.75
2016 Earnings
MonthGoodsearchGoodshopOtherTotal
2016 Total$0.00$0.00$0.00$0.00
January$0.00$0.00$0.00$0.00
February$0.00$0.00$0.00$0.00
March$0.00$0.00$0.00$0.00
April$0.00$0.00$0.00$0.00
May$0.00$0.00$0.00$0.00
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