Address
P.O. Box 145
Upperco, MD 21155
Website
www.noonansyndrome.org/home.html
Description
The Noonan Syndrome Support Group, Inc. is committed to the most accurate and current understanding of Noonan syndrome.
Our Mission
The Noonan Syndrome Support Group, Inc. is committed to providing support, current information, and understanding to those affected by Noonan syndrome.
It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this syndrome and how it affects the lives of those who have it.
With the help of our members from around the world we hope to be able to provide further research into the areas of symptoms, diagnosis, treatment and outcomes related to Noonan syndrome.
We recognize the importance of linking patients, specialists, and researchers from around the world to improve our understanding of this disease and are committed to helping establish connection across the globe
Category
Health & Disease