Address
6368 West Quaker Street Post Office Box 643
Orchard Park, NY 14127
Website
www.huntershope.org
Description
Organization run by former Buffalo Bills quaterback Jim Kelly that promotes research into treatments and newborn screening for Krabbe Disease and other leukodystrophies. The charity is named for Hunter Kelly, Kelly's own son who was diagnosed with the disease at the age of 4 months. Hunter Kelly succombed to complications of the disease in August 2005 at the age of 8.