HPS Network - Hermansky Pudlak Syndrome

Amount Raised:
$348.61

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Information

Address

One South Road
Oyster Bay, NY 11771

Website

www.hermansky-pudlak.org

Description

The Hermansky-Pudlak Syndrome Network (HPS Network) is an organization for people affected by this rare genetic syndrome that causes albinism, a bleeding disorder, low vision and may cause colitis and pulmonary fibrosis. We provide support to affected families and promote medical research.

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