Address
One South Road
Oyster Bay, NY 11771
Website
www.hermansky-pudlak.org
Description
The Hermansky-Pudlak Syndrome Network (HPS Network) is an organization for people affected by this rare genetic syndrome that causes albinism, a bleeding disorder, low vision and may cause colitis and pulmonary fibrosis. We provide support to affected families and promote medical research.
Category
Health & Disease