The Histiocytosis Association of America, created in 1986 by Jeff and Sally Toughill, is an international partnership of patients, families, physicians and friends. This nonprofit organization was formed with these goals in mind:
To promote scientific research into the histiocytoses, seeking to develop better means of control and management of the diseases, and ultimately seeking to develop scientific means to prevent and cure them.
To provide solutions to some of the problems which are specific to patients suffering from this disease and to offer support to such patients and their families.
To educate and promote education related to the histiocytoses.
Membership in the Histiocytosis Association has continued to grow at an impressive rate since its inception. Currently, more than 5,000 persons are registered members. There are no membership fees charged for anyone wishing to become a part of the Association family.