The Northern Ohio Hemophilia Foundation (NOHF) is a private, non-profit 501(c)3 organization that was established in 1954 and serves 24 counties in Northeast Ohio for people with genetic bleeding disorders. NOHF provides education, advocacy, counseling, scholarship programs, family activities, emergency financial assistance and camping scholarships.
Hemophilia is one of the most costly medical disorders in the world. Many of our members do not have the financial support required for this type of chronic disease, which can cost more than $200,000 annually for treatment. If the family has insurance, co-payments average from $40,000 to $70,000 a year. This cost puts tremendous financial burdens on families. Most children have reached their lifetime insurance cap by the age of twelve. At the present time, no known cure is available for this disorder.