Address
533 West Uwchlan
Downingtown, PA 19335
Website
www.CureFA.org
Description
Foundation raises money for children and adults with Friedrich's Ataxia, a form of Muscular Distrophy.
"Hello, and welcome to the Web site of the Friedreich's Ataxia Research Alliance [ FARA ] — www.FAResearchAlliance.org. This site is designed for patient families, scientific investigators, and healthcare professionals interested in Friedreich's Ataxia [ FRDA ]. The materials provided here include basic background information on FRDA [ its cause, symptoms, and potential treatments ], summaries of current research, scientific abstracts, links to publications from scientific and medical journals, guidelines for research grant applications, explanations of current clinical trials and ongoing studies, FARA Updates (newsletters), information helpful to patient families, and information on how you can make a donation or raise funds to support the research."
The above material is taken from the FARA website.
Category
Health & Disease