EDS Network Cares is a non-profit organization established and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome.
Our mission is to help improve the quality of life for people who have Ehlers-Danlos Syndrome, through research, education and support.
by supporting research, effective management techniques will be developed and ultimately, a cure will be found.
through support, we meet the needs of those who deserve personal attention in crisis and in grief
through education and advocacy, we promote awareness, understanding and ensure access to treatment