The Ehlers Danos National Foundation is completely described on our web site at www.ednf.org. We have several chartered branches. The No. Central NJ branch is one of them & is also one of the very first chartered chapters.
I, Lisa Schoenberg, RN am the founder and am still the President of this chapter that services New Jersey and the national organization.
We service those living with the connective tissue genetic disorder, Ehlers Danlos Syndrome.
Kindly advise what additional information you will need.
Thank you kindly,
Lisa Schoenberg, RN