Dravet.org

about

The IDEA League (International Dravet syndrome Epilepsy Action League) is an international partnership of parents and professionals united in the purpose of creating greater awareness and understanding of Dravet syndrome and the spectrum of related genetic, febrile sodium channel epilepsies. We are a volunteer-based 501(c)3 nonprofit organization founded by parents of children with Dravet syndrome. Our mission is to promote research and awareness for the early diagnosis and appropriate treatment of Dravet syndrome and the related spectrum and to provide resources and support to improve the quality of life for affected individuals and families.

address

P.O. Box 66599
Baltimore, MD 21239-6599

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supporters
54
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amount raised
$518.70
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