The Cystinosis Research Foundation is a non-profit 501 (c) 3 charity established to find a cure for cystinosis. Cystinosis is a rare metabolic disease that affects every organ in the body including the eyes, kidneys, liver, muscle and brain. Cystinosis affects approximately five hundred in the United States and less than 2,000 worldwide. Currently there is no cure for cystinosis.
The Cystinosis Research Foundation 's mission is to raise funds to support clinical and bench cystinosis research, to find better treatments and to find a cure for cystinosis. We have established the CRF Research Fellowship Program to support and encouage young scientists and doctors to establish careers in cystinosis research. We are the largest grant provider of cystinosis research in the world.