Address
PO Box 406
West Kennebunk, ME 04043
Website
www.clovessyndrome.org
Description
Mission:
CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
Vision:
An improved quality of life for people with CLOVES Syndrome
Goals:
1. Provide information and resources to educate others about CLOVES Syndrome
2. Foster and promote a supportive community
3. Build and sustain a broad base of funding sources to support our mission and goals
4. Utilize 80% of incoming funds to provide financial assistance to those impacted by
CLOVES Syndrome
5. Participate in and promote CLOVES Syndrome research to assist in a complete
understanding of the disease.
Category
Disabled, Health & Disease
