Address
4046 38th Avenue SW
Seattle, WA 98126
Website
www.butterflyguild.org
Description
The Butterfly Guild aims to raise money to fund exploratory, developmental, and novel research that will ultimately lead to healthier, happier, and longer lives for children diagnosed with Shwachman Diamond Syndrome. The Butterfly Guild hopes to build awareness of Shwachman Diamond Syndrome in the Seattle community and beyond. We hope to educate not only doctors but also parents and the community at large about this rare bone marrow failure disease that can affect many components of the body.
Category
Health & Disease
