Beat Dystonia

about

We are a pro-bono non-profit that is leading the fight against Dystonia. Dystonia is the disorder version of Parkinson's and continues to go undiagnosed and misdiagnosed. I am the spokesperson for the disorder -- I have appeared on Oprah, The Today, spoke at TED, etc, etc... Our current site is www.lifewithdystonia.com. A new site will be launched shortly. We are not a rare disorder, even though we are categorized as such. I had to go from doctor to doctor to get one to agree with me -- I was able to self-diagnose, yet specialists had no idea what it was. I taught myself to walk again last year. If you want more info, we can send you press at beatdystonia@me.com We are the only pro-bono group out there. Thanks! Best, Ms. Rogers Hartmann BEAT DYSTONIA www.lifewithdystonia.com

address

5318 Drane Drive
Dallas, TX 75209

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