Barth Syndrome Foundation

about

The Barth Syndrome Foundation, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission statement says, we are dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome - a sometimes fatal, oftentimes debilitating genetic disease.

address

PO Box 618
Larchmont, NY 10538

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supporters
3
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amount raised
$1.61
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