Barth Syndrome Foundation

Amount Raised:
$1.61

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Supporters:
2

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Information

Address

PO Box 618
Larchmont, NY 10538

Website

www.barthsyndrome.org

Description

The Barth Syndrome Foundation, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world.

As our mission statement says, we are dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome - a sometimes fatal, oftentimes debilitating genetic disease.

Category

Children & Youth, Health & Disease