The Alpha-1 Association is a member-based not-for-profit organization dedicated to identifying those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research. Alpha-1-Antitrypsin Deficiency (Alpha-1) is a genetic disorder that can cause liver and lung disease in children and adults.
The Alpha-1 Association is a patient-focused and patient-driven organization dedicated to identifying individuals affected by Alpha-1 and improving the quality of their lives through support, education, advocacy and to encourage participation in research. As a 501(c) (3) not-for-profit membership organization, the Association has been providing services to Alphas and their families since 1991. It is governed by a volunteer board of directors comprised of individuals and family members with Alpha-1 and clinicians with expertise in the treatment of Alpha-1.